Philadelphia Nesties
Dear Community,

Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.

If you have questions about this, please email [email protected]

Thank you.

Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.

hello!

Sorry I've been MIA - I lurk here and there, but I never get around to posting.  I just wanted to pop in and say the babies are great and I'm literally counting down the days until they come home!  No 'actual' date yet, but one doctor told us it would be very possible for them to come home early July at the rate they are going... and another said by their due date (July 30th).  So the next 2 months are going to be interesting and will keep us on our toes!

We get to take the babies out every day now for a couple of hours for Kangaroo time (skin to skin) or we can hold them in a blanket.  We help with any care while we're at the hospital - so diaper changes, wiping crud from their mouths and eyes, and baths if we stay late at night.  I love staying for baths because I get to see their little faces!  They're still on cpap machines (you'll see in the photos below) but we hope to go from that to nasal cannula (just oxygen through the nose) in the next week or two.  

I am pumping like a madwoman, but my supply isn't that great and it kills me because my goal was for these kiddos to be EBF.  I know it's not the end of the world, but for me it is, so I went on Reglan (pharmaceutical for GI issues that has a side effect of increased prolactin)  to try to increase it.  It's working somewhat, but not enough to feed 2 babies.  So the kiddos are getting my milk for about 60-75% of feeds and then supplemented with 'study milk'.  Penn is doing a study right now in low birth weight preemies to find out if donor milk is better than formula.  One would assume it is, however, donor milk is pasteurized hence losing a lot of the great things in breastmilk so they need to actually prove it.  So with the flip of a coin (and all nurses and doctors are blind) the kids might be getting donor milk or formula to supplement.  They were on donor milk for the 1st 3 weeks. All of a sudden, Finn has started to reflux bad so I'm assuming he's on formula.  I have a friend coming through for me, so I'm hoping that will give me the extra they need right now.  Once they go to the breast or up their feedings, I have no idea what I will do.  It's stressful.  Pennsy doesn't do donor milk, just formula, so without the study it would have been straight formula so at least they *might* be getting formula.  And donor milk would have been $50 a day.  If these kids want to go to college, we can't afford $100 a day... Lol.

Other than that, they are status quo which is awesome.

Finn at birth was 2.0 and now he's 2.11 (fattie!)  I like to call him baby buddha:

 image

 Isla was 1.14 at birth and is now 2.7!  This is her drunk off mommy's milk photo:

image

Once I have more pics of their precious little faces, I will post more!  Hope all the mommies + preggos + nonpreggos are doing well!

 

Pregnancy Ticker

Re: hello!

  • Oh my goodness they are getting so big!  Don't beat yourself up over your bfing.  You are doing the absolute best that you can!

  • mzovocemzovoce member
    Ancient Membership 10000 Comments Name Dropper Combo Breaker
    Thanks for the update. You're doing a great job! 
    [IMG]http://i277.photobucket.com/albums/kk47/mzovoce/s628552874_122950_682.jpg[/IMG]
  • You ARE doing a great job. Giving them event 25% of your milk is amazing. It's a ton of work! 

    They're so adorable. Keep hanging in there! 

    My Boys

    [IMG]http://i48.tinypic.com/2d9vkzn.jpg[/IMG]
  • Ahhhhh so cute!  You are doing fantastic - any milk they get from you gives them the benefits, so don't fret!  

    I was panicked about EBF and pumping enough and mentioned it to my OB at my annual.  She told me that even if I only nurse once a day, DD will get the benefits. This was such a relief to me.   

    I may have some milk at home that I can donate to you.  It wouldn't be much (maybe like 20ish ounces), but let me check my freezer stash and see how much I need and I will PM you on FB. 

    Baby Birthday Ticker Ticker
  • LOVE this update! You are doing such a great job at handling all of this and I'm so inspired by you. I also love the photos you've posted on FB of you holing them. You just look so happy that you radiate joy! Keep up the good work and they'll be home with you before you know it. Smile
    Baby Birthday Ticker Ticker

    Olivia's book recommendations, liked quotes, book clubs, book trivia, book lists (read shelf)Follow Me on Pinterest
  • Yay! I can't wait to see them with canulas instead of cpap machines! What rockstars. 

    And seriously..don't stress about the milk. But if you somehow figure out a way to have both of them EBF, fill me in haha. I can not keep up so I'm supplementing with formula. I justify this by buying them Earths Best. Expensive but I don't care. 

    My little nuggets

    image

  • NOV2007NOV2007 member
    Eighth Anniversary 5000 Comments Name Dropper Combo Breaker

    They are getting so big!!  Great job!

    Isla has a very long arm.  lol

  • They really are so adorable.  I'm looking forward to them moving to the nasal canulas too.  I'm so excited by how well they are doing.  It's amazing. :) 
  • They are so cute! You must love snuggling with them.

    You're doing a great job trying to pump so much for them. Just try to stay hydrated get rest and eat well too. Easier said then done, of course.

     I can't make assumptions but I'm hoping your Reglan is rx'd by a physican and you're taking it under the care of a doc. It's a serious medication that can cause permanent side effects that are similar to Parkinson's disease. You def shouldn't take it for more then 12 weeks and there are lots of drug interactions with other medications. And no booze either. 

    I'm only saying this because I remember when I was in bf group after my daughter was born there were moms so desperate to increase supply they were getting Reglan from another country  :-/   I thought the LC was nuts to recommend that.

    I hope it all goes well. If you do use HMFHB or other donated milk you should consider or ask if there is a way to get the milk tested. All sorts of pathogens and viruses (HIV!) and medications can pass into bm, no offense to anyone here willing to donate of course.

    Best of luck!!! I hope they can come home soon! 

    Baby Birthday Ticker Ticker
  • all good stuff, you are doing awesome and the best you can, remember that! and they look so much bigger already, it is really amazing. Keep growing Isla and Finn, you have lots of friends waiting to meet you when you break out of that joint!
    David John 4.19.01
    Jonathan Dean 4.5.08
    Anna Capri 5.4.11
  • So sweet! Glad to hear they're doing well, and awesome that they could be coming home with you in July!

    Great job with the BFing -- as someone else said, even if they're just getting some of your milk, that's huge. 

  • meldotmeldot member
    Eighth Anniversary 1000 Comments Combo Breaker
    So happy for you and so glad you're in good spirits. They are beautiful!
    Baby Birthday Ticker Ticker
  • Thanks for the update! Glad everyone is doing well!
    image

    #1  12.11.11
    #2  10.23.13 EDD
  • Glad to hear they are doing well. Keep up the good work! They are precious.
    BabyFruit Ticker
  • image larrysdarling:

    They are so cute! You must love snuggling with them.

    You're doing a great job trying to pump so much for them. Just try to stay hydrated get rest and eat well too. Easier said then done, of course.

     I can't make assumptions but I'm hoping your Reglan is rx'd by a physican and you're taking it under the care of a doc. It's a serious medication that can cause permanent side effects that are similar to Parkinson's disease. You def shouldn't take it for more then 12 weeks and there are lots of drug interactions with other medications. And no booze either. 

    I'm only saying this because I remember when I was in bf group after my daughter was born there were moms so desperate to increase supply they were getting Reglan from another country  :-/   I thought the LC was nuts to recommend that.

    I hope it all goes well. If you do use HMFHB or other donated milk you should consider or ask if there is a way to get the milk tested. All sorts of pathogens and viruses (HIV!) and medications can pass into bm, no offense to anyone here willing to donate of course.

    Best of luck!!! I hope they can come home soon! 

    Thank you!!  The snuggling is amazing.  As much as I know I'm in for it come July, I can't wait till they are home!

    As far as Reglan, yes, I'm under the care of a doctor and LC.  I know all about the side effects and hesitated even doing it for almost a month. I really struggled, I did not want to go on it.  I was hoping the issues would go away but they never did - apparently people with PCOS have trouble with milk supply.  The parkinson-like side effects are super scary but I knew I was only going to take a 14 day course.  The tardive dyskinesia is actually something that is only found with significant usage, so I wasn't as concerned with that as I was the side effect of depression. There's a lot of discussion that many "non-lactating" moms who see a significant increase in supply, find that the opposite occurs (for me, it's an amazing feeling - no depression whatsoever).  The hubs was going to watch me closely and I've felt like a million bucks on it.  But birth also lifted a heavy weight off my chest because of my troubling pregnancy, so the past few weeks, while stressful have been mentally uplifting.  My hubs is a PharmD, we did a LOT of research and he knows so much about drugs, I guess I'm just lucky there.

    Are you sure those Moms in your group were getting Reglan from another country?  There's another drug, Domperidone, that essentially is a similar makeup to Reglan but actually something entirely different.  It's not FDA approved in tablet form in the US, just powder form, and super expensive to compound here in the US.  So many people get it from other countries.  I too got mine from another country, HOWEVER, this drug has none of the side effects that Reglan does.  It's a completely different chemical makeup.  I am going to finish a 14 day course of the Reglan and do the same with Domperidone.  Many LC's follow the research of Dr. Jack Newman so If you want to read research of his, it's here - http://www.breastfeedinginc.ca/  That's why LC's do suggest looking into purchasing it from other countries (through a very legit Canadian website - not a shady 'viagra' website as most people assume) because the compounding form is just out of control price-wise. I did so much research my brain hurt.  It's really unfortunate the FDA operates the way it does...look how long we waited for Plan B over the counter without a prescription!

    I think the problem with LC's is that they may be "suggesting" the fixes but not educating women enough on these drugs.  Most are overworked, rushing from mom to mom.  I'm lucky the head of LC at Pennsy spends a lot of her day in the NICU and also spends the most amount of time with the women with very low gestational age babies, in an effort to make sure we have all the resources to make it work cause a lot of moms give up due to the stress. 

    But the bottom line is that the Reglan is working and my supply is up!  Now I just have to keep it up Smile

    Pregnancy Ticker
  • Ahhh........they are soooooooo cute!!! You are doing such a great job and am so happy to hear that they are growing day by day. Take care of yourself. xoxoxoxo
  • image thejuliejewels:
    image larrysdarling:

    They are so cute! You must love snuggling with them.

    You're doing a great job trying to pump so much for them. Just try to stay hydrated get rest and eat well too. Easier said then done, of course.

     I can't make assumptions but I'm hoping your Reglan is rx'd by a physican and you're taking it under the care of a doc. It's a serious medication that can cause permanent side effects that are similar to Parkinson's disease. You def shouldn't take it for more then 12 weeks and there are lots of drug interactions with other medications. And no booze either. 

    I'm only saying this because I remember when I was in bf group after my daughter was born there were moms so desperate to increase supply they were getting Reglan from another country  :-/   I thought the LC was nuts to recommend that.

    I hope it all goes well. If you do use HMFHB or other donated milk you should consider or ask if there is a way to get the milk tested. All sorts of pathogens and viruses (HIV!) and medications can pass into bm, no offense to anyone here willing to donate of course.

    Best of luck!!! I hope they can come home soon! 

    Thank you!!  The snuggling is amazing.  As much as I know I'm in for it come July, I can't wait till they are home!

    As far as Reglan, yes, I'm under the care of a doctor and LC.  I know all about the side effects and hesitated even doing it for almost a month. I really struggled, I did not want to go on it.  I was hoping the issues would go away but they never did - apparently people with PCOS have trouble with milk supply.  The parkinson-like side effects are super scary but I knew I was only going to take a 14 day course.  The tardive dyskinesia is actually something that is only found with significant usage, so I wasn't as concerned with that as I was the side effect of depression. There's a lot of discussion that many "non-lactating" moms who see a significant increase in supply, find that the opposite occurs (for me, it's an amazing feeling - no depression whatsoever).  The hubs was going to watch me closely and I've felt like a million bucks on it.  But birth also lifted a heavy weight off my chest because of my troubling pregnancy, so the past few weeks, while stressful have been mentally uplifting.  My hubs is a PharmD, we did a LOT of research and he knows so much about drugs, I guess I'm just lucky there.

    Are you sure those Moms in your group were getting Reglan from another country?  There's another drug, Domperidone, that essentially is a similar makeup to Reglan but actually something entirely different.  It's not FDA approved in tablet form in the US, just powder form, and super expensive to compound here in the US.  So many people get it from other countries.  I too got mine from another country, HOWEVER, this drug has none of the side effects that Reglan does.  It's a completely different chemical makeup.  I am going to finish a 14 day course of the Reglan and do the same with Domperidone.  Many LC's follow the research of Dr. Jack Newman so If you want to read research of his, it's here - http://www.breastfeedinginc.ca/  That's why LC's do suggest looking into purchasing it from other countries (through a very legit Canadian website - not a shady 'viagra' website as most people assume) because the compounding form is just out of control price-wise. I did so much research my brain hurt.  It's really unfortunate the FDA operates the way it does...look how long we waited for Plan B over the counter without a prescription!

    I think the problem with LC's is that they may be "suggesting" the fixes but not educating women enough on these drugs.  Most are overworked, rushing from mom to mom.  I'm lucky the head of LC at Pennsy spends a lot of her day in the NICU and also spends the most amount of time with the women with very low gestational age babies, in an effort to make sure we have all the resources to make it work cause a lot of moms give up due to the stress. 

    But the bottom line is that the Reglan is working and my supply is up!  Now I just have to keep it up Smile

    That's really interesting to know all that about the compounding. You know, it's been 2+ years since I was in group so I can't say with 100% either way but I know that the moms threw around discussion of both Reglan and Dom.

    I think my concern is (and at the time was) that people were casually discussing taking or ordering these drugs but weren't under the care or guidance of a physician or even a prescribing Nurse Practitioner.  Like you and I both know there are nasty side effects that can be permanent and I was really surprised that women would be just taking stuff that they saw recommended on the internet. It's like people doing internet 'research' on vaccines and deciding not to vaccinate their kids without speaking to actual professionals about (that's another topic for another time!)

    I'm pretty sure I eventually want to be a board certified lactation consultant and I definitely see myself getting an advanced degree in nursing after completing my BSN and getting a few years of practice under my belt. Most LC's are RN's too and have experience with meds but I personally worry when I see or hear LC's making recommendations when they don't have the license to prescribe. There are a lot of ethical and safety issues involved if they make a recommendation and aren't the ones doing supervision or follow up, kwim?

    I will def take a look at the link you provided and I appreciate you posting it. I'm glad it's working for you and I'm even more glad you're taking it the way you are. It sounds like you have a lot of support not only for the babies but for yourself as well.  

    Sometimes I smh because I wonder how such sweet and wonderful people can be dealt such a difficult hand between conceiving, carrying, and birthing their babies. You and your guy seem to be handling it with grace and love and I hope your girl and boy continue to improve with no major setbacks. 

    Baby Birthday Ticker Ticker
Sign In or Register to comment.
Choose Another Board
Search Boards