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Ovarian Cysts

Hey Ladies,

 I was wondering how many of you have experienced ovarian cysts and if/what you did about them or if you just dealt with them. In highschool I would tell my doctor almost every visit I had a lot of tenderness very low on either my right or left side of my abdomen. She always blew it off and on regular internal exams she would say she couldn't feel any cysts. Finally she ordered an ultrasound and it showed I had 1 cyst 5cm large. The ultrasound tech at the time suggested to my doctor I get another ultrasound done to get a better look at it. It was normal, it went away on its own but then I had another one a bit smaller growing on the other side. My doctor just said I would have these come and go probably forever, nothing serious.

 I'm 25 now, and I still don't think its "serious" but I'm getting really sick of it. About every 3-4 months I get really bad tender pain just like I had in high school.  One time out of no where, I had the most excruciating pain in the same spot and when I lied down the pain crawled up my stomach almost to my ribs and it felt like I couldn't even breathe. I thought I was having an appendicitis attack. It went away after about an hour but following that I had tender pain all week. The doctor thought that it was probably a cyst that burst but not to worry about it. I'm having this tender pain again and bending, stretching, going to the bathroom, coughing even, any jarring movements hurts it so much. It feels like a bunch of pressure that is just going to burst! I also get extremely painful periods, but I don't know if it's related. It hurts too much to even have sex. When we do, it's just jabbing pain located right where the tenderness is.

 I was wondering if any of you deal with cysts and if there's anything that helps at all! Thank you in advance! 

Re: Ovarian Cysts

  • I would definitely start seeing another doctor who doesn't "blow" you off. 
  • well I don't consider it "normal" when it interferes with me feeling well enough to make it to class (like today for example, I'm only going because I have a project to hand in, and i NEVER miss class) or interferes with me doing certain things with my husband. It's getting extremely frustrating :(
  • I deal with multiple ovarian cysts on both ovaries...have been since I was about 23, I'm 28 now. I've been to my own doctor as well as sought a second opinion after one of my cysts sent me to the emergency room. Unfortunately, I've been told by both doctors that until I'm TTC and am consistently unsuccessful, surgery is a last resort. They don't want to risk me losing an ovary. I deal with so many of the same things you deal with.

    TRY:  Evening Primrose Supplements twice a day (two pills twice a day when your pain is bad), ask your doctor for a pain killer, schedule ultrasounds every 6 months if you can. It's up to you but some doctors recommend birth control to suppress the size and the pain. Don't let the doctors blow you off. If you have pain, call them so they can record it. Hope some of this helps.

  • Go see another doctor. Especially if your cysts are chocolate cysts or you think you have endometriosis. Last year I was in and out of the emergency room 4 times. I had to have an emergency surgery eventually because I had chocolate cysts that were constantly rupturing and one was twisting my ovary it could have destroyed it. My sister didn't even know she had cysts until one day she went into the emergency room bc of excruciating pain (her cyst was bursting). They performed and emergency surgery on her, but couldnt save one of her ovaries, it was too late the cyst had destroyed it.

    Please go see another doctor. We both had endometriotic (chocolate) cysts, which you may not have, but you need a closer look. If you're having that bursting pain, or any pain you should get another opinion. Doctors are very hesitant to perform surgery when were young and haven't had kids yet, but there are birth control pills they can put you on to help stop the cysts from forming/growing. The hormones in the pills even help shrink them.

    I don't want to scare you, I just want to let you know that it's something that needs to be looked into, so you don't end up in the same boat as me or my sister. 

    Best of luck. I'm sorry you have to experience the pain. I know how bad it can be!

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    ladybuginl0ve
  • I had one once and it hurt so bad that I had to go to the emergency room because my mom thought it was my appendix! It was extremely painful.
  • I would definitely see another doctor. Large cysts, and a 5 cm cyst is considered large, when gone untreated can cause your ovary to twist which leads to emergency surgery and the loss of that ovary. 

    I had a cyst show up on a CT scan for something unrelated. The doctor who read the CT scan recommended I see my OBGYN who in turn thought it would be wise to surgically remove the cyst. Because of my wedding I put off having it done for six months. I finally had a laparoscopy about a month ago and the cyst had grown to be grapefruit sized. Unfortunately my doctor couldn't save the ovary so now I am down to one. Recovery has been pretty hard because of the size and pretty rough emotionally because of the loss of the ovary.

     Get a second opinion just in case!  

    SMR
  • I'm 25 too and I have poly cystic ovarian disease and endometriosis...so I understand the pain you're going through. I go to a great gyno and he put me on continuous birth control...it s suppose to help with the cyst...I haven't had a period in five years because of the BCs....But I feel so much better...I also did a lifestyle change too...I try to workout at least five days a week and that really helps with the pain....The downside of birth control is weight gain...but I have been able to keep my weight down to 134 and I m 5 7...so continuos BCs are a great option...Just talk to your gyno about it :)
    Anniversary
  • image Lutherbride2011:
    I'm 25 too and I have poly cystic ovarian disease and endometriosis...so I understand the pain you're going through. I go to a great gyno and he put me on continuous birth control...it s suppose to help with the cyst...I haven't had a period in five years because of the BCs....But I feel so much better...I also did a lifestyle change too...I try to workout at least five days a week and that really helps with the pain....The downside of birth control is weight gain...but I have been able to keep my weight down to 134 and I m 5 7...so continuos BCs are a great option...Just talk to your gyno about it :)

     

    Just a bit of info - it's a syndrome not a disease. ;)  Polycystic ovary syndrome.  And, keep in mind, BCP is a great option to treat one of the many symptoms but it is not a cure all and those who suffer from multiple symptoms should be treated (likely) with more than just BCP. :) 

  • I had the exact same thing happen to me. When I was in college I went to the Dr. complaining of the same symptoms and she blew it off as well. About 4 years later, I woke up in the middle of the night with an excruciating pain and thought it was appendicitis. After some tests at the hospital, the Dr. wanted to do surgery because the tests were inconclusive and they wanted to make sure it wasn't my appendix. Come to find out it was a cyst that had ruptured, but my Dr. also told me I had endometriosis (which can only be identified 100% through surgery...I think? Maybe an MRI would show something too??). After learning about endo. I realized that's what I've really been feeling all these years. Have any of your Dr.'s ever discussed that possibility?
    BabyFetus Ticker image
  • Since I was about 17, I've been dealing with ovarian cysts. Every so often, I have one burst (which to me, feels like labor) and the excruciating pain usually lasts about two days. After two years of complaining about pain, tenderness and swelling in my stomach, I switched OB/Gyns. I saw the new OB and see sent me to an RE. The ultrasound showed several ovarian cysts (measuring around 3-4 cms each).

    They sent me for a laparoscopy the next day. When they started poking around, it showed that I had Stage 3 endometriosis as well, which can also cause severe pain.

    I would suggest seeing another doctor, explaining you situation. A lap should really be a last resort because of price, but if you are in this much pain, it deserves to at least be looked at. 

    Dave and Kathleen - 09.12.09:

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  • Hi ladies, thank you so much for all of your comments! I just noticed half of your comments now. I think at my next visit I will really tell her how badly it hurts and how much it affects my life. When the doctor blows it off, then I always blow it off, too, thinking she should know best. We have never even discussed endometriosis but I've done some research in to it. I have a yearly exam coming up soon so I would like this to get looked in to further. I'm just nervous of it not getting looked after and ending up in some of your situations, like going to the hospital, getting surgery, or even losing an ovary. I'm so sorry that some of you had to experience these things, but thank you for sharing your stories with me so that I can hopefully take more control over my own body and what it's telling me.
  • BkX2BkX2 member
    First Comment
    I have had some issues with cysts. I had one rupture during sex and spent 3 hours in the ER for an ultrasound, but the time I had the ultrasound my body had absorbed the fluid and I was 'fine' I'm pretty sure birth control helps. Good luck! 
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