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Another update on SBJ

It's day five and I swear it feels more like day 50. I can't believe we are still in the hospital in basically the same condition that we were a few days ago.

On Sunday they did an xray and discovered a pneumothorax. They had to insert a tube into his side to get the air out of his chest cavity and reinflate the top part of his lung that collapsed. Since then the hole that caused the problem has closed up and I think if there is a leak at all it's very minimal and healing.

Other than that -- there has been little change. He is still sedated and paralyzed and they expect he'll stay that way for a while. At least until he is off the ventilator because it runs the risk of him pulling the tube out. They said this morning that he will be in IV antibiotics for a few weeks, as well.

As of this morning he is still critical but for the moment stable. The doctor is "cautiously optimistic" and we are pretty much living off of that sliver of optimism.

How the feck we ever got to a place where a doctor is cautiously optimistic about my sons life is just not sinking in. We sit there all day and all night and we know what his condition is and we know that it's going to be a slow process but we look at his bloated face and we're shocked that this is happening every single time. We look at him, cry, sit down and try to get into a conversation to forget it all. The repeat.

We want to thank you all about for your vibes, thoughts, prayers and hugs. You're all incredible. Thank you for letting me update here and listening to me. It feels good at just go "WTF!", even if it's over the computer (although I do say it once a day to Gareth while we kick something).

Hope to update soon with good news.

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Re: Another update on SBJ

  • Lizzie, I am so, so sorry!  I cannot imagine what you're going through, or at least I don't want to.  Your poor little angel.  I don't know what else to say except that I'm so sorry for what you're going through.  We're all hoping that he comes out of this very soon and is back up to mischief soon.

    You're in the U.S. right now, no?  How does that work out for insurance, Gareth's job, etc.?  Not that I want to burden you with those concerns, I'm just curious.  Tell me to eff off if you need to.  :) 

    (((((HUGS)))))

  • Thanks for the update Liz! I can't believe how incredible you are being through this, you are truly unbelieveable being so positive. I cry just reading your updates. I am keeping you, Gar and James in my thoughts and prayers all the time. I hope that you James improves rapidly soon.
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  • all of you are in my prayers as well. Glad to see things are looking a bit up- certainly better than getting worse- and I hope hope hope they continue this way for you. Hang in there!
  • Thanks for updating us. I've been checking in to see how he's (and you're) doing. I'm glad things are looking 'cautiously optimistic' and will keep you in our prayers.

    I'm glad you're near family at least at a time like this. Has Gar found out about returning to Ireland??

    Mum to W (4) and M (nearly 2)
  • *hugs*

    Thoughts, prayers, and bucketloads of vibes headed your way! 

  • Thanks for the update, I'm keeping your family in my thoughts and prayers.
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  • Hugs and prayers continue to be sent your way.
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  • (((((((((hugs))))))))))
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  • Still sending you all my love...
  • I'm glad to hear it's now cautiously optimistic. Keeping my prayers and vibes your way for James' complete and quick recovery.
  • I can't imagine what you both are going through! DH and I both are praying and thinking of you all. I wish there was something tangible that we could do for you, but we are praying that it is just a matter of time for his body to heal itself. *hugs*
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  • I'm sorry the news isn't better for you guys, but I'm glad it sounds like the hospital is keeping a very close eye and working very hard for your little one. Hopefully that good care will translate to marked improvement soon. 

    We are here anytime you need to vent, and I'm sending lots of good thoughts and vibes.  

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  • thanks for the update Liz

    all i can say is I can't imagine what you are going through, I really have been keeping SBJ in my prayers every day

    (((((((((((hugs))))))))))))

  • Thanks for the update.  You are all still in my thoughts and prayers.  I hope he takes a turn for the better very soon.
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  • thank you for another update.  optimistic is optimistic!  my family and i will continue to pray/trust daily for a speedy recovery for baby James, and for you and your husband to have all the love and support you need.
  • Thank you so much for updating, we have been thinking and praying for SBJ over here.  I am glad that they are a bit optimistic and hopefully the next time you hear optomistic without the cautious in front of it.
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  • Liz, still sending you all the vibes I can...though happy you have at least a sliver of hope from the doctors.  May the hope grow hugely!!!!!!!!!
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  • Thank you for updating.  I will continue to pray for the little guy.  Hopefully things will get better quickly.
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  • I'm an IN lurker, but I wanted to tell you that I'm thinking of you and your little guy.  I can't imagine what you're going through, but I'm confident that the health professionals are doing everything that they can to help him.  Thinking of you all.
  • Thank you for the update. I really hope that SBJ gets better soon, and you can all fly home together. I've been thinking of you guys, and keeping you in my prayers. If I can do anything, please let me know. ****HUGS****

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  • thanks for keeping us posted. i logged in just to see if there is any news- i am so glad they are optimistic, even if guarded. i will continue to pray for your little fighter, that he pulls though this fast. also, prayers for your doctors and nurses who are doing their best, and that they continue to do everything possible! (((hugs)))
  • I can't imagine what you are going through. Hugs and love sent your way.
  • I am so so sorry this is happening to your family and most of all your little boy. This all did seem to happen relatively quickly and please know that we are constantly thinking of your family and praying as we do. Continue to stay strong and thanks for your update.
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  • I've been thinking about you.  Please vent away.  Hopefully he becomes better very quickly.
  • Lizzie, hoping and praying for good news soon. Glad that he is at least stable and I hope things start to improve a bit each day as the antibiotics gain ground on the infection and his body heals. You guys have a lot of people thinking of you and rooting for you!
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    u/s #2 (7w6d) - a gummy bear measuring 8w0d, HR 167 bpm

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  • Thinking about you and your family.  Thanks for keeping us updated.  I hope that sliver of hope turns into a huge chunk very soon!
  • Thanks for the update.  I'll be thinking of you and sending lots of vibes your way.
  • Oh Lizzie, I'm so sorry that you are going through this. My thoughts and good vibes are with you and your little guy.
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  • Lizzie-

    I'm just catching up from the holidays and I am just seeing this.  All of my thoughts and prayers are with you and your family!  Stay strong and I'm praying for some good news for you guys VERY soon!

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